Lack of Detail
We realize you all may have gotten the idea of how our day went yesterday based on the pictures posted and I am sorry there was little communication to go with it but we just really needed a minute. This came as a very big surprise to all of us including Dr. Yeager. Eden has been feeling great and had no pain which is unusual considering the progression we are seeing now. Obviously things are not good based on what we are seeing. (at least 10 to 15 new spots) We spoke in depth with Dr. Yeager right after the scan and he will be working with Dr. Mosse and Dr. Maris today to come up with a plan. We of course have told them what we would like to do and so now we will get their professional input and put things together. Neuroblastoma won this battle but we are still ahead on the war! Eden has an amazing group of Doctors on her side and we are no where near ready to give up!
We have received so many wonderful emails from Eden fans sending love and good thoughts and they mean so very much to us! I always try to prepare myself for the worst at scan time so that i am not completely devastated if its bad but i don't really think it works....lol i truly believe these are emotions a parent is not equipped to deal with.
I will update when we have a plan.