Long Weekend

Here is hoping you all had a wonderful long weekend. Eden and Riley spent the weekend at the Houseboat with Mama Hope and Papa Ron and although i don't have a lot of detail about the weekend it sounds like they had tons of fun. One thing i got from Eden was that she went tubing ...... a few times! What more can we ask for? She is truly feeling wonderful. They got back in town around 7 last night and we ran over to say hi to Cece and swim for a few minutes and roast some marshmallows over the fire and headed home to get ready for the week.

Eden did have clinic on Friday and once again needed Blood but her platelets were still hanging in there. They are going lower and lower with each visit but so far no transfusions. We are heading back to clinic today after school to see how she is doing. Her white count has also been holding its own so far. We expect things to get a little worse before they get better so we are prepared to hear bad counts each time we visit the clinic and its so hard to say when it will happen. MiGB is much more unpredictable then Chemo in that aspect.

Maybe Mama Hope has some pictures from the weekend we can upload!

Have a great short week!!