Not so good news

First of all, I wanted to apologize to everyone for not keeping up with the updates. We have been very busy at the hospital the last 3 to 4 weeks. Wednesday we got confirmation that the current study is not being as aggressive as we had hoped so Eden has officially relapsed. She has new growth in her left leg. This is not a new area for her; it has shown up on previous scans when her contamination level has been high. The plan is to run to Philadelphia for a low dose MIBG therapy treatment. This treatment has been very successful for Eden. Now the problem with repeating this treatment will be that she will build up a resistance to repeated drugs. But, I’m hoping that this will work to bring her back into a good standing. The last few weeks Eden has been though many transfusions, scans and the surgical bone marrow aspiration as of yesterday. In the midst of all this she still has managed to make a few days of school and continued home tutoring. Her spirits have been good, except during the evenings and late at night she has had sever pain that were dealing with. During those times she has just been very uncomfortable. But for the rest of the time she’s typical Eden. As far as the Kieran_5 drug antiangio study she has completed 6 full weeks of treatment and is off the medication as of yesterday. The plan is to put her back on it after we verify counts returning from the MIBG Therapy so we might just have a two week break from those medications.