< Princess Eden Adams: Not so good news

Princess Eden Adams

A place learn about Eden Adams and her fight against Neuroblastoma.

Friday, September 14, 2007

Not so good news

First of all, I wanted to apologize to everyone for not keeping up with the updates. We have been very busy at the hospital the last 3 to 4 weeks. Wednesday we got confirmation that the current study is not being as aggressive as we had hoped so Eden has officially relapsed. She has new growth in her left leg. This is not a new area for her; it has shown up on previous scans when her contamination level has been high. The plan is to run to Philadelphia for a low dose MIBG therapy treatment. This treatment has been very successful for Eden. Now the problem with repeating this treatment will be that she will build up a resistance to repeated drugs. But, I’m hoping that this will work to bring her back into a good standing. The last few weeks Eden has been though many transfusions, scans and the surgical bone marrow aspiration as of yesterday. In the midst of all this she still has managed to make a few days of school and continued home tutoring. Her spirits have been good, except during the evenings and late at night she has had sever pain that were dealing with. During those times she has just been very uncomfortable. But for the rest of the time she’s typical Eden. As far as the Kieran_5 drug antiangio study she has completed 6 full weeks of treatment and is off the medication as of yesterday. The plan is to put her back on it after we verify counts returning from the MIBG Therapy so we might just have a two week break from those medications.


At 2:39 PM, Blogger Cammie said...

I am so sorry to hear this Rourke...I have been thinking about and praying for Eden and this news just flat out sucks!

Ms Eden--continued prayers for you
Your Friend Cammie in Gahanna

At 8:21 PM, Blogger generals_sweetheart said...

thinking of you guys if you need anything just give me a call

Love you guys!

ps we are in the new house as of tommarrow and have other news to tell you!

At 6:13 AM, Blogger the Thomas team said...

Sending you love and prayers! Go, Eden!

At 9:03 AM, Blogger robinandamelia said...

Thoughts and prayers for Eden.

At 11:53 AM, Blogger Olivia said...

I am so sorry to hear this news. Please know you are in my thoughts and prayers.

Much love,

At 10:15 PM, Blogger Jennifer (Kids Cancer Crusade) said...

Sending lots of love!

At 11:16 PM, Blogger karen said...

eden- you are so amazing to be so brave during all this! you are so beautiful! keep up the fight! i'm sending you the bestest of best wishes!

At 8:37 AM, Blogger nikki the red said...

Eden is amazing. She's a strong fighter. I am still praying hard for her continued slaying of this beast. Has she been at Columbus Children's at all? I volunteer on Monday nights on J5

Hugs, Nikki


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