Rourke and I had a call with Dr. Mosse today for about 45 min and a plan is in place. First off she does agree that the Disease has progressed but maybe not as bad as we thought... But either way it tells us that the meds she is on now are not working. Eden will start back on the Topo/Cyclo on Monday in the Clinic as outpatient and she will do two rounds of this chemo. Some of you may remember this from past March. Its the same drugs. They worked very well for her then improving her Disease by more then 70% and it wasn't extremely harsh on her. She will lose her hair....no doubt this time..lol But i think she will be completely fine with it.
After the two rounds of chemo we will do scans and if we see things looking better then she will go to Philly for MiBG Therapy once again. We did this back in August of last year and had amazing results from it. If all goes as planned we will be heading there around the last week of April or first week of May.