Medical Update

After our discussions with Dr Yeager (Columbus), Dr Mosse (Philadelphia), Dr Reynolds (Los Angeles), Dr Russell (Houston), and Dr Sholler (Vermont) along with many others. Here is the current list of options that Eden has available to her.


#1 Boston Trial: Anti-angiogenic Chemotherapy: A Phase II Trial of the Oral 5-Drug Regimen (Thalidomide, Celecoxib, Fenofibrate, Etoposide and Cyclophosphamide) in Patients with Relapsed or Progressive Cancer.
#2 Kettering 3F8's consult with Dr Kushner
#3 Fenretinide in for compassionate use.
#4 Humanized Antibodies
#5 Zoledronic acid and low dose Cyclophosphamide-both are commercially available.
#6 CEP-701
#7 Low Dose MIBG Therapy
#8 Other Antiangiogenic agents
#9 AZD 2171 – New just opened in Philly


Overall directive,
Starve the cancer cells and protect her marrow. Platelets must be 75000 to start any of the trials.

Must redo her bone marrow 3 wks prior to starting any treatment, after starting any treatment we will rescan in a month from the start date.

We have been very busy trying to determine what is the next possible step for Eden and Dr. Mosse is going to email additional information for us to review to help use make the next best decision. This quick list of options is derived from hundreds of phone conversations, conferences and emails. As we get more details and a narrower scope I’ll be sure to get the information on-line for you all to see.

Thank you for all the phone calls, emails and congratulations in regards to Eden, I’m sorry if I haven’t have time to respond. But, as you can see we really have been a bit busy.