< Princess Eden Adams: The Longest Day

Princess Eden Adams

A place learn about Eden Adams and her fight against Neuroblastoma.

Tuesday, March 20, 2007

The Longest Day
















Monday was the worst day of this week. We showed up at 9am and they started running fluids on Eden. They have to see her urine diluted to a % before starting the Chemo and it took 6 hours to get there. Once we get to that point it only takes about 1 hour and 15 minutes for her Chemo to run. The rest of the week will be better because we will run fluids all evening and night at home from this point forward. We took tons of things to try and keep her busy and we always have the TV to fall back on but she still gets a little bored. Unfortunately she is stuck in one of the isolation rooms because of the VRE she had last year. As you can see by the pictures i took yesterday she took a little cat nap and then played most of the day at the little table we set up while Mommy tried to work. I believe she came close to eating her weight yesterday.. Thought it would be fun to try and list what she ate yesterday. Cereal, English Muffin, Grapes, Kudos's M&M bar, 3 bags of hulless cheese popcorn, chicken tenders, onion rings, three musketeer bar, princess pop tart, baby bottle pop, chicken strips, mashed potato's and gravy, corn, role...... I could not have been happier to see her eat all of this and i hope it continues. She seems to be feeling fine and we talked yesterday about her losing her hair and she is OK with it... We don't feel there is any need to go deep into any detail with her about the Cancer getting worse as a life of Chemo is all she knows and doesn't really pay attention to one V's another. i am sure on some level she understands that the change wasn't good but she knows we are always there to talk to her whenever she wants and we never hide anything from her. I kinda tried to make this a fun week for her by having a different person take her to clinic each day so she wouldn't get bored with old Mom. So today she will be there with CeCe (which i am sure will make this one of her fav days) and tomorrow it will be Eden, Me, Riley and Andy. Eden and Andy will go over to clinic while Riley and I go across the street for his appointment with the Ortho about his leg. Thursday will be Mama Hope and Friday will be Bonnie (Andy's mom) This is also a huge help to Rourke and I as we try very hard to continue our work schedules for as long as possible.
I would like to mention a wonderful Women named Debbie who we met around about way through the website. Deb has been working tirelessly to put together a raffle for Eden. She has been hitting up everyone she knows and doesn't know for items to raffle off. I feel awful that i have been very little help to her as right now my plate is so very full but if you have any ideas or would like to give her a hand please feel free to email me and i will get you in touch with her.
Thanks for checking in on our girl!

2 Comments:

At 11:24 AM, Blogger Olivia said...

I am so sorry to hear that Monday was such a hard day. I hope things improve now that you can do fluids from home. Eden, you are amazing, and so patient with the doctors.

Riley, I hope your leg is healing and that the trip to the ortho goes well!

The raffle sounds amazing. Thanks for posting about it.

I am thinking of you and praying for you all as always.

Olivia

 
At 11:25 PM, Anonymous Shelly Adams said...

Eden,
I remember how very long those days of chemo are since I did so many weeks of this same stuff with you last spring. I sure hope that you having different people with her each day works out. At least you only have two rounds of it to do this time. Just make sure that they all remember to get the mesna before they leave (We had to go back for it once, but only from the parking garage, do you remember? Then we went to Made 2B Friends at Easton). Hemmorragic cyctitis is no fun, so Eden be sure to drink lots and lots! Keep up the good work with your eating, too. I'm very proud of you! I'll be looking for pretty, sparkly decorations for your cute little bald head. I'm sorry that your hair is gonna fall out, but I sure have missed that cute little bald head of yours. See you soon, Eden. I love you! Shelly

 

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