Sunday, August 26, 2007
Tuesday, August 21, 2007
Kieran 5 Drug Antiangio Trial Update
Eden is into week three of 28 taking her chemo from home. We had to give her a boost of Stem Cells right off the bat. So, we stopped the Etoposide for now to let her counts recover this was having an impact on her platelets. Eden is still getting Platelet transfusions at clinic but hope that her stem cells start to pick up and hope that the transfusions taper off. The Thalidomide was a bit difficult to get but now that she's on it other than making her tired she's going great. She's to take the Thalidomide right before bed, because when she does, it put's her down. Next week is the start of the new school year on Monday. She will be a big 2nd grader, new building, new staff and new teachers. I hope that you enjoy some of the picture that I put up these are friends and adventures that the kids have got into.
Sunday, August 12, 2007
Have a box of tissues ready!
The YouTube Video has been relocated to the right index!
Also, this years Hemecamp pictures all 1000 of them!
Sunday, August 05, 2007
Off to Camp
Wednesday, August 01, 2007
Eden is doing well and planning for her big day on Friday.. She will be leaving for Hemoc Camp and she cant wait! This will be her third year going and i don't even know how to explain my feelings on that. Of course i wish we didn't know the meaning of Hemoc but on the other hand i am so very grateful that she was able to make it one year much less 3! We feel very blessed every day we have this amazing little princess. Dad took her to clinic on Tuesday and her counts were fine and really seem to be stabilizing which is wonderful news. I doubt she will need any more platelet transfusion but she may need to continue getting blood once or twice a month. Who knows we will just play it by ear. We do now have the Rx for her new drugs however one will take a little time to get as it requires Dr. Yeager to get Certified to prescribe it and the pharmacist must be certified to fill it.. Amazing considering i believe this is one of the anti-inflammatory. I believe the issue involves the very serious birth defects if taken or even handled by a pregnant women.
Just a heads up to keep Aug 17Th open for a very special event. The first annual Project Runway.... Eden will be modeling for this event and all proceeds benefit Children's hospital Oncology Center. It will be held at the Grand Host East (8660 East Broad Street in Reynolds burg) Show times will be 6 p.m. and 7 p.m. and tickets will be $5.00 per person. I will update tomorrow with the website where you can go buy your tickets.
Something i ran across today and wanted to share......
A MOUSE TRAP STORY.. (This is excellent.......) A mouse looked through the crack in the wall to see the farmer and his wife open a package. What food might this contain?" The mouse wondered - - - he was devastated to discover it was a mousetrap. Retreating to the farmyard, the mouse proclaimed the warning : There is a mousetrap in the house! There is a mousetrap in the house!" The chicken clucked and scratched, raised her head and said, "Mr.Mouse, I can tell this is a grave concern to you, but it is of no conseque nce to me. I cannot be bothered by it." The mouse turned to the pig and told him, "There is a mousetrap in the house! There is a mousetrap in the house!" The pig sympathized, but said, I am so very sorry, Mr.Mouse, but there is nothing I can do about it but pray. Be assured you are in my prayers." The mouse turned to the cow and said "There is a mousetrap in the house! T here is a mousetrap in the house!" The cow said, "Wow, Mr. Mouse.I'm sorry for you, but it's no skin off my nose." So, the mouse returned to the house, head down and dejected, to face the farmer's mousetrap . . alone. That very night a sound was heard throughout the house -- like the sound of a mousetrap catching its prey. The farmer's wife rushed to see what was ca ught. In the darkness, she did not see it was a venomous snake whose tail the trap had caught. The snake bit the farmer's wife. The farmer rushed her to the hospital , and she returned home with a fever. Everyone knows you treat a fever with fresh chicken soup, so the farmer took his hatchet to the farmyard for the soup's main ingredie nt. But his wife's sickness continued, so friends and neighbors came to sit with her around the clock. To feed them, the farmer butchered the pig. The farmer's wife did not get well; she died. So many people came for her funeral, the farmer had the cow slaughtered to provide enough meat for all of them. The mouse looked upon it all from his crack in the wall with great sadness. So, the next time you hear someone is facing a problem and think it doesn't concern you, remember ---- when one of us is threatened, we are all at risk. We are all involved in this journey called life. We must keep an eye out for one another and make an extra effort to encourage one another.