Welcome God Brother
A place learn about Eden Adams and her fight against Neuroblastoma.
It looks like Eden has started to Engraft.
Eden did in fact make it out of the hospital Sunday afternoon. She no more made it home and had me chasing her around the block on her bike.. She is truly feeling good. One of Eden's great aunts is in the hospital in Huntington WV so Eden, CeCe and I took Grandma JoAnn to see her today ............there and back in 8 hours... shewwww I have no idea how we made it that fast considering it seemed we were stopping every hour to feed this child.
Eden is still in patient.
Eden did receive red blood; however, her line leaked. Her bed sheets and clothes were soaked in blood. They got her cleaned up and ready for the rest of her evening. An antibiotic push was administered and another IV started with ZYVOX® (linezolid). Eden is currently eating, coloring and watching TV. I just spoke with Dr. Beng Fuh and he is working on getting one of Eden’s important prescriptions taken care of. Potassium Iodide, (SSKI®) is a medicine that protects her thyroid gland.
Eden started her morning today with chest pains and a fever of 102.8
Eden started her morning yesterday a bit pale and warm prior to her getting her stem cells back.
As you can probably gather from the last Update... Eden's counts were right down scary on Friday leading into the weekend. Therefore, she received packed Red Cells and platelets.
Eden made it through the weekend, She's looking good except for the platelet issue, major bruising. Eden missed a lot of important social engagements over the weekend due to her condition. We apologize to everyone but it was important to keep Eden down a notch. When Eden had downtime, She was with her mom coloring, reading, and resting in the pool. Monday Eden will be off to school and we have Stem Cells scheduled for Tuesday morning. Dr Yeager and Dr Mosse have conversed and decided that it was important to get Eden's Stem Cells back as soon as possible. We would have infused on Monday but couldn't guarantee delivery.