Picture from today's scan

We don't have details as of yet. But, I will update you as soon as we discuss the scan with Eden's Dr's.

Eden's Visit with Santa

Eden's current schedule

I hope everyone had a Happy Thanksgiving.

Tuesday the 27th Eden will be going to clinic as normal and then will get her injection at 2:30pm to prepare her for her MIBG scan on Wednesday the 28th at 11:30am with no sedation. So, fingers crossed and hope that Eden's result are stable.

Columbus Blue Jackets

Eden had some of here friends show up today while getting transfused: #25 Jason Chimera, #27 Manny Malhotra, #45 Jody Shelley, #9 David Vyborny, and #2 Kris Russell

Eden's counts

Hello everyone,
Well it's been awhile and I'm sorry. Eden counts have been extremely low and we’ve been busy tending to her. She has missed a lot of school and was trying to maintain as much normal as possible. Her platelets have been hit hard with the MIBG and I've convinced everyone to try Neumega which is a platelet builder. She is into week two and we'll keep our fingers crossed. I'll update you soon with additional information but overall Eden is hanging tough!

Low-Dose MIBG Therapy

Eden had her low-dose MIBG therapy yesterday uneventfully and her Post-treatment scan shows the same two spots in the left leg, with no evidence of new disease. We very pleased with this and will keep our fingers crossed that we can continue to treat Eden with this therapy. Eden will be treated in 5 weeks instead of 6 in Philadelphia. We will have to see what happens to her platelets in the next few weeks. The new transfusion number is 20000; if Eden is not below 20, she will not be transfused. This is so that we can closely monitor how her body is handling the MIGB Therapy.