Eden and Riley had a wonderful weekend. We went to see Flushed Away and they both loved it. We stayed busy pretty much all weekend and Eden had no trouble keeping up. On Sat. Cece invited us to an OSU party at the Columbus Athletic Club Downtown and they had tons of great food and little gift bags for all the kids and bowling! We had a very nice surprise when Julieanna from Eden’s class was also there and as you can see by the pictures they had a blast bowling. I so wish I had video of it as I cant remember the last time I laughed so hard. When they weren’t bowling they were sitting in front the gentleman hired to juggle and make balloon animals. They watched him for well over an hour and I have to say that I watched for a long time as it was pretty interesting the things this man could make out of Balloons.
Eden didn’t make it to school today because she is having some potty issues and was concerned about having an accident at school. Completely understandable! This is probably our fault because constipation is a very likely side effect of the ABT-751 so we have been trying to be proactive with her stool softener as well as a powder called meralax that we mix with juice. Every child is different so it’s kinda a trial and error process and although this was not the effect we wanted it is better then her being constipated which is very painful for her and dangerous.
We are heading to Philly tomorrow for Eden’s checkup on Wed. And then turning around and heading right back. The Wonderful CeCe has offered to ride with us so what we would could be promised many many hours of singing Christmas Carols………lol There is a station here in Columbus that has been playing them for the last two weekends so every time we are with CeCe we must listen to them… Ugh … how can it be that time of year already?? Eden is not happy about the idea of driving all that way for a checkup and then right back.. She is so funny… “Mom, are you kidding me? They want us to drive all the way to Philly for an hour checkup? Are they crazy?”
Because we will be making so many trips we are starting to look into alterative methods of getting there as driving is always an option it is a very very long time for Eden to be stuck in a car. 10 hours one way…… (Not to say in the least that we are complaining.. I would walk there with her on my back if that is what it took to keep her feeling this good.) And we have been so blessed to have Capt Jack willing to fly us back and forth up to this point but that is a very expensive kindness on his part. Flying Commercial would be about 400.00 a month which we won’t do unless it’s the last option and we have even looked into going by train which is what we may do for our trip in Dec. We can drive to Cincy or Cleveland and catch the train and ride all the way to Philly for about 150.00 total. The only downside to the train is it can take anywhere from 12 to 16 hours to get there but I thought it might be a fun adventure for Riley and Eden once or twice. So we have many options to consider and I now pray that we have the opportunity to exercise them all and this drug works for Eden for many years to come.