Because of your continued prayers and good thoughts we are headed back to Ohio with nothing but good news..... Scans are good!! Thank you all! Unlike Columbus they will not allow me to watch theMiBG scan on the screen in Philly. But when it was done I peeked while they were checking it and I saw something very bright in the neck area.. As the panic started to take over I realized that it was right where her thyroid is and that the thyroid is very bad to uptake the MiBG which is why we give her a med called sski which protects her thyroid. For whatever reason it is not doing its job so there was a lot of uptake. We also had a few tense moments today waiting for her Liver enzymes to come back as they were very high on Monday which would prevent her from starting her ABT on time.. In the end they came back within range to start. Other then that we had a pretty smooth week..
Yesterday when Eden was done at the hospital we decided we needed to get out of the craziness of downtown philly so we headed just out of town to grab a bite to eat and look around. CeCe treated us to ihop which we love and don't have in Columbus and then we looked around at a few stores and ran into Walmart for new batteries for Eden's Pixter. On the way back we had the bright idea to take the freeway which was not smart.. We ended up lost for about an hour and a half and laughed harder then I have laughed in a long time... It took me about 20 min to realize that the way you have to drive in Philly is assume there are no laws of any kind and you are good. We knew we were in trouble when we stopped at one place and the lady said "Honey, I don't think you can get there from here" LOL But we made it in time for crafting and all was good.
I have some great pictures to post of Eden with all of her wonderful nurses and Dr. Mosse. I will try to upload them tomorrow when we are not on the road.
Have a great day!