Philly on the 1st

The Princess will be heading to Philly on the 31st to party it up at the Ronald McDonald House on Halloween. Her treatment will on the 1st for another low dose of MIBG therapy. Just for clarification the spot on her chest is her port. I’ve got a couple of email and phone calls on that one. I’m sorry for not pointing it out.

MIBG Scan

Here is the previous scan and today’s scan. Things are really no better and no worse. So, for the time being we'll take this as a positive. Eden is scheduled for a trip to Philly on November 1 for another Low Dose of MIBG therapy. Stable results are ok. Can you tell I'm convincing myself of that? She is going to school as much as possible and getting tutored almost every Monday and Wednesday. I’ll post more as I get additional information.

Clinic Visit

Today at clinic was uneventful, Just a long day! HGB: 7.0 WBC: 3.2 and Platelets were 48,000. A red blood transfusion was in order. I convinced Eden to enjoy a nap after coloring. She had colored a Rocket picture with and outer space type of theme for her Nurse Lindsay today. She recieved 100ml's over a few hours. Getting ramped up for next weeks MIBG scan and has to be in clinic this Friday as well for .

Hanging in there!

Eden has been up and down this week and last weekend. Overall She's being typical Eden. Next Tuesday we'll go to back to clinic to check her counts and continue to get her ready for the next trip to Philly. Oct. 17th will be a major milestone for her. It will determine weather she returns to Philly or if I have to pull out a trip to Vermont or LA. I'll get a new picture or to up soon.