Eden has been feeling great. She went to school all day Monday and Tuesday and really seems back to herself now. i have missed my spunky little girl so much. I spoke with Dr. Yeager last night and he said her Bone Marrow Biopsy was unchanged. less then 1% on the left side. He seemed very disappointed but I was thankful it hadn't gotten worse. Based on those results that would make her eligible for the Antibody studies but the big problem now is her Platelets. At clinic today her counts were....... Platelets 31 and ANC of 10,000. (sorry i didn't get her Red Blood but it was fine) Platelets of 31 mean they are finally holding steady but not moving up fast enough to get us to 75 to meet requirements for Antibody study and ANC of 10,000 means she can stop the GCSF shots after tonight. Her ANC will probably drop by half once she stops the shots but 5000 is still very good. Even for the ABT-751 she must have platelets of 50 so i would guess we will be talking with Dr. Yeager and Dr. Mosse soon to see how quickly they think she will be able to start on it. I really really hoped she would be able to do the antibody study and it is my plan to have Dr. Yeager speak with the Study Dr. In NY to try and find a loop hole to get her in. i don't feel comfortable putting her on the 751 and just sitting and waiting for the NB to get worse.
I will update again once we talk to the Doctors.