A New Day!
Eden is feeling great! She had a wonderful weekend filled with friends, family and shoe shopping and more Birthday Celebrations... We had clinic this morning and all of her counts were fine so no transfusions and she can stop her shots for White Count....Go Eden!! Her Liver Enzymes were a bit higher which is of some concern. It was decided late last week that she would not have surgery to remove her Gull Bladder because it would cause a delay for MiBG. Sometimes you have to pick your poison... Literally! She is on Medication for the Gull Bladder and a strict low fat diet. We just need to keep things calm until she gets through MiBG and Stem Cell Rescue and her counts recover... is that really asking to much?? LOL She made it to school for most of today and should make it for Tuesday and Wed. She has labs and a CT Scan scheduled for Thursday to see if her Organs still look enlarged. She and Riley are going to school on Friday but leaving early so we can Head to MI for special event for someone very close to us and then Eden and I are flying to Philly from Detroit on Sunday.
I know we told you last week that her MiBG looked much better and we found out on Friday that her Bone Marrow is still clean. She is going into MiBG next week with about the same amount of NB as she had last Aug when she did it. We are very pleased that the Chemo is still working for her but that will only last so long. A cure must be found!! Please don't forget about the Yard Sale Thursday , Friday, Sat and Sun at 6560 St Rt 605 in New Albany.