MiBG Scan

So here is what you are looking at. The top Scan is from yesterday and the bottom is from Early March(the last scan) The one from yesterday is an improvement! I cant say for sure how much of an improvement but I think it looks much better. You can still see some of the spots but they are much lighter. Prayer and Chemo are a miraculous thing. You will see very bright spots in her Jaw and in her Belly area but those are normal uptake and not necessarily NB.

On the Down side... We were informed this morning that Surgery feels Eden needs her Gull Bladder out. For her this is much more serious then with most people because of her White Count. Infection is a concern with any surgery but with a child who has a very compromised immune system the bar is raised! Dr. Yeager is going to speak with Dr. Mosse to weigh the risks and set a plan. If we do this next week her white count will be better but still far from great and there is concern about going into MiBG right after surgery but if we wait and it should become more urgent while going through MiBG Therapy the complications only get worse. We will keep you updated on the plan.

We do know that we are heading to Philly on the 7th and she will be injected on the 8th so i would guess she will be discharged on the 11th.

We are expecting to be discharged today!!! WOOOOHOOOO I want to thank everyone for all of the wonderful and funny cards. She has 40 sitting here that she loves to go though and look at time and time again!