Home at last
Eden was released yesterday and we are so happy to be home! She is still having a lot of pain in the private area as it heals but we are managing. One thing that helps the most is soaking in the bath which is challenging as her port is still accessed. She will have to stay accessed for the next few weeks to receive IV antibiotics at home 4 times a day. Yesterday her ANC was up just a tiny bit but its the first time it has gone in the right direction in weeks so we will just keep our fingers crossed. It was 6 on Tuesday and 14 on Wed it must reach 200 by Monday to prevent her from getting a Stem Cell Rescue. Rourke and I have somewhat made our peace with the fact that her ANC may not hit the magic number which would mean we will be looking for her next treatment option. Although we try to keep the faith we must always keep our eye on the ball and know what our next move is. We have a lot of options at this point and nothing is being ruled out. My hopes would be going to New York for 3F8 antibodies but we have two very good oncologists in our corner (Dr. Yeager and Dr. Mosse) who will lead us down the right path.
Eden received so many cards at the hospital that each and every day i was overwhelmed by the love. We truly enjoyed each every one of them and i must say AGAIN how blessed we are to be surrounded by so many amazing people! I need to mention one of the senders as i know what a sacrifice it must be to continue to check on Eden and take the time to send her cards. Tina Cerino, angel Jarets mom and his Grandmother. I am sure it must be challenging to continue to check up on Eden considering her great loss. Jaret was just the bravest little man and we miss him so. It seems like over the last year we have lost so many great warriors: Allie Neff, Ian the Great, Jaret and just last week Christi and Shawn. With all the things we are able to do in this day, how is it we weren't able to save these children's lives?
The very sweet Julia Sanders created a wonderful video on her website of Eden if you would like to check it out. She did such a great job. Thank you Julia!