We pretty much just hung out around the house this weekend. Eden of course has no resistance to anything so leaving the house seemed like a bad idea. She had clinic this morning and Dr. Yeager is back in town so she is set up to have her stem Cell Rescue tomorrow (Tuesday) and Dr. Yeager said we should start to see her counts coming up in 7 to 10 days. (These must be magic numbers because everything in the world of cancer seems to be 7 to 10 days...lol) Turns out I was oh so wrong about the 3F8 trial in NY. In order to do this or any NANT study she must maintain an ANC of 750 and platelets of 50/75. We truly cannot wait that long to start treatment. The one exception to this rule is ABT-751 out of Philly. This is the oral Chemo which really has no side effects but also is not a drug used to get rid of any of the NB but just keep it stable. There are children who can stay on this drug for long periods of time with no increase so we will be talking more with the Doc's soon to get a "longer” term plan together. I don’t know if she can do some of the trials while on the 751 or not. She should be ready to start the 751 in 3 or 4 weeks depending on how long it takes her counts to recover.
Eden did have to have platelets again today and still is not feeling the greatest but making improvements. She misses school so much and all of her friends and teachers......
Thanks for checking in.